Project
The Social Organization of Patient Engagement
Conducting an Institutional Ethnography (IE) of Participatory Engagement (ParE) that begins in the standpoint of PWLECPM and begins to identify the institutional interests underpinning pain research in Canada.
Opening Up Patient Engagement as a Topic for Inquiry
Guided by institutional ethnography, an alternative sociology developed by Canadian scholar Dorothy Smith, this project aims to open up patient engagement as an important topic for investigation. Our overarching question is: “What is the social organization of participation in research for people who suffer from chronic pain and, in particular, how might this organization impact the engagement of those who face structural marginalization?”
Our study will purposively recruit people living in Canada who have experienced chronic pain and who are marginalized, and we will conduct interviews to understand the full range of experiences with patient engagement, including people who are regularly involved in patient engagement, those who may have been engaged at one time, those who have wondered about engagement, and those who may like to be engaged but cannot for some reason. To explore how patient engagement ‘happens’ in Canada, we will also interview researchers who do or do not engage patients in research as well as people who have been involved in establishing patient engagement in Canada.
Project
Situating Meaningful Engagement Within Contexts of Precarity
Examining how precarious status noncitizen populations have been incorporated within patient engagement in chronic pain research initiatives
