PEPR Partnership | Projects

PEPR's Projects

Our research aims to improve the understanding and inclusion of people with lived experience of chronic pain and marginalization (PWLECPM) in research. Our team will explore how and in what ways engagement can be made more inclusive, safe and equitable through a series of interrelated projects.

The primary objective of our partnership is to create a Participant Engagement Research Hub (ParE Research Hub) where PWLECPM can be brought into meaningful contact with other PWLECMP, researchers, policymakers, and advocates in order to advance a greater focus on equity, diversity, inclusion and decolonization (EDI-D) in this area.

Our Goals

Enhance the mobilization and utilization of chronic pain research for decision making in health and public policy.

Advance sociological research of chronic pain that critically highlights institutional and social power and oppression.

Facilitate the collaborative engagement of community partners and PWLECPM in all aspects of research on chronic pain, marginalization, and health equity.

Support Canadian academic and non-academic partners conducting research on chronic pain and marginalization.

Create relationships of trust between funders, policymakers, service providers, researchers, and PWLECPM.

Boost Canada’s profile as a leader in participant engagement and chronic pain research.

Research Projects

Project

Interpretive synthesis of patient engagement frameworks

Exploring what is being said about patient engagement and what types of frameworks, guidelines, tools, and models exist to guide and support patient engagement.

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Project

Situating Meaningful Engagement Within Contexts of Precarity

Examining how precarious status noncitizen populations have been incorporated within patient engagement in chronic pain research initiatives

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Project

Setting the Foundation through Community Consultations

Eliciting input from marginalized communities or groups both within health care and broader social settings about approaches to “patient” engagement.

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Project

The Social Organization of Patient Engagement

Conducting an Institutional Ethnography (IE) of Participatory Engagement (ParE) that begins in the standpoint of PWLECPM and begins to identify the institutional interests underpinning pain research in Canada.

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Project

Brokered dialogue study around the concept of Participant Engagement in Research

Exploring how “patient engagement” is characterized and understood by those holding a range of perspectives in the chronic pain field.

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Project

CASPR (Critical Appoaches to Scholarship in Pain Research)

An international community of practice devoted to critical approaches to chronic pain.

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