PEPR Partnership | Projects

PEPR's Projects

Our research aims to improve the understanding and inclusion of people with lived experience of chronic pain and marginalization (PWLECPM) in research. Our team will explore how and in what ways engagement can be made more inclusive, safe and equitable through a series of interrelated projects.

Our Goals

Enhance the mobilization and utilization of chronic pain research for decision making in health and public policy.

Advance sociological research of chronic pain that critically highlights institutional and social power and oppression.

Facilitate the collaborative engagement of community partners and PWLECPM in all aspects of research on chronic pain, marginalization, and health equity.

Support Canadian academic and non-academic partners conducting research on chronic pain and marginalization.

Create relationships of trust between funders, policymakers, service providers, researchers, and PWLECPM.

Boost Canada’s profile as a leader in participant engagement and chronic pain research.

Research Projects

Project

Community Consultations

Eliciting input from marginalized communities about how, when, and where to engage people living with chronic pain and marginalization in research.

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Project

The Social Organization of Patient Engagement: an Institutional Ethnography Study

Conducting an Institutional Ethnography of patient engagement to explore the often-invisible social relations that underpin or organize the experiences of people with chronic pain and marginalization.

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Project

Brokered Dialogue Study Around the Concept of Participant Engagement in Research

Exploring how “patient engagement” is characterized and understood by those holding a range of perspectives in the chronic pain field.

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Project

CAPS Research Network (Critical Approaches to Pain Scholarship) - Formerly CASPR

An international research network devoted to critical approaches to chronic pain.

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Project

Interpretive Synthesis of Patient Engagement Frameworks

Exploring what is being said about patient engagement and what types of frameworks, guidelines, tools, and models exist to guide and support patient engagement.

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Situating Meaningful Engagement Within Contexts of Precarity

Examining how precarious status noncitizen populations have been incorporated within patient engagement in chronic pain research initiatives

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