PEPR's Projects
Our research aims to improve the understanding and inclusion of people with lived experience of chronic pain and marginalization (PWLECPM) in research. Our team will explore how and in what ways engagement can be made more inclusive, safe and equitable through a series of four interrelated projects.
.webp)
The primary objective of our partnership is to create a Participant Engagement Research Hub (ParE Research Hub) where PWLECPM can be brought into meaningful contact with other PWLECMP, researchers, policymakers, and advocates in order to advance a greater focus on equity, diversity, inclusion and decolonization (EDI-D) in this area.
Our Goals
We aim to meet our six primary goals through a combination of four projects. Each research project is co-led by an established investigator and research trainees and includes at least one person with lived experience.
Enhance the mobilization and utilization of chronic pain research for decision making in health and public policy.
Advance sociological research of chronic pain that critically highlights institutional and social power and oppression.
Facilitate the collaborative engagement of community partners and PWLECPM in all aspects of research on chronic pain, marginalization, and health equity.
Support Canadian academic and non-academic partners conducting research on chronic pain and marginalization.
Create relationships of trust between funders, policymakers, service providers, researchers, and PWLECPM.
Boost Canada’s profile as a leader in participant engagement and chronic pain research.
Research Projects
Explore our ongoing research projects below
Setting the Foundation through Community Consultations
Eliciting input from marginalized communities or groups both within health care and broader social settings about approaches to “patient” engagement. We will learn collaboratively and carefully how, when, and where to engage.
The Social Organization of Patient Engagement
Conducting an Institutional Ethnography (IE) of Participatory Engagement (ParE) that begins in the standpoint of PWLECPM and begins to identify the institutional interests underpinning pain research in Canada.
Situating Meaningful Engagement Within Contexts of Refuge
Exploring how refugee claimants living with chronic pain can be meaningfully engaged and what this means for social and health equity.
Brokered dialogue study around the concept of Participant Engagement in Research
Understanding the ways “patient engagement” is characterized and understood by those holding a range of perspectives in the chronic pain field.